The common practice of handwashing together with water touching your skin would become excruciating due to this extraordinary condition.
People with the extraordinarily uncommon illness aquagenic urticaria must endure intense allergic reactions whenever they come into contact with water.
The affected individual Kendall Bryce from Durham UK describes her experience with this transformative illness.
Despite being only fifteen Bryce suffered her first water contact leading to such severe discomfort that she describes it as being torched alive.
The mere contact with water in any form requires Bryce to engage in a long-lasting struggle against severe pain.
Bryce’s illness makes her entire lifestyle intolerable since it impacts both her health outcome and her maternal duties as she approaches the birth of her two children.
Credit: (SWNS)
The woman needs heavy support from her mother because she cannot complete basic child care responsibilities such as bathing her child.
The emotional impact on her becomes overwhelming due to her perpetual fear about the duration until her body triggers another episode of discomfort.
The story recounted by Tessa Hansen Smith in America mirrors the experiences of Canadians who suffer from EDS. Hansen-Smith received her diagnosis when she was eight before she experienced doubt and disbelief from others and developed physical manifestations.
Her extreme condition requires that she stays isolated from others since her tears and sweat produce reactions which force her to follow a very different way of life.
Medical researchers have not identified the causes of aquagenic urticaria which means they can only do health management rather than provide a treatment solution.
Medical experts have postulated that water interactions with substances on the skin trigger the condition although numerous aspects about this phenomenon remain unknown.
Uncertain conditions keep Bryce and Hansen-Smith perpetually exposed to discomfort.
c. The condition causes Bryce Smith and Hansen Smith to face social and emotional challenges because doctors and people in general fail to grasp their condition which simultaneously affects them physically with distressing symptoms.
Through their experiences these individuals demonstrate the problems associated with rare disease existence which demands more attention to treatment development and research support.
The women face tremendous difficulties but they demonstrate outstanding ability to bounce back. These individuals narrate their experiences because they want to heighten knowledge of their rare disease while driving vital investigation into their specific condition.
People with aquagenic urticaria envision a future that arrives with effective diagnoses and treatments so they together with their companions regarding their disorder can live typically.
The people affected by this condition persist in standing up for awareness about their ailment as they exhibit miraculous human perseverance while maintaining hope during these demanding circumstances.
Their condition may be rare, but their stories of struggle and resilience are universally inspiring, reminding us of the critical need for research into all rare diseases.
Feature Image Credit: (SWNS)